Mar10
Today we reaffirm the mission of the Firefly Fund

There are pivot days. Days that change your life. Some days you mourn. Some days you celebrate.  Of course, March 10th, 2016 is the day we began this journey. Two…Read More

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Mar8
Austin’s Fox 7 News Highlights the Andrews Sisters on World Rare Disease Day

Fox 7 News in Austin shared the story of Belle and Abby to mark World Rare Disease Day, which coincides with the one year anniversary of the launch of the…Read More

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Dec21
Warrior Sisters–An Update from Pam & Chris Andrews

Warrior Sisters. That is how I would describe my incomparably beautiful daughters, Belle and Abby. They are both brave and strong and kind and trusting and warm and gentle yet…Read More

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Jul13
Belle & Abby Celebrate Dell Children’s Medical Center’s 10th Anniversary

The Andrews family was grateful to share in the celebration of the 10th anniversary of Austin’s Dell Children’s Medical Center. The whole staff at Dell Children’s have been an integral…Read More

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May18
Andrews Family Featured on Fox News in Phoenix, Arizona

Fox News in Phoenix, Arizona featured Belle and Abby in a story about NPC1. The six-minute video segment highlighted the connection between the Andrews and Parseghian families as they work…Read More

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May18
Belle and Abby’s Story Shared Overseas

Sending thanks across the pond to Closer magazine in England, which profiled the Andrews family and shared their heartfelt story.  The two-page spread in the print edition of the magazine…Read More

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Apr17
Thank You from the Firefly Fund for Supporting Our Inaugural Event

Thank you so much to our friends and supporters for coming out to help us launch the Firefly Fund. We are so grateful for the support of our community, and…Read More

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Mar23
Step up to the Tee Fore Their Future!

EXCLUSIVE, SIGNED GOLF BAG  UP FOR AUCTION Want to make a difference TODAY? You can light the way of the Firefly Fund by participating in an online auction for a…Read More

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Mar16
Andrews family featured in Austin American-Statesman

“Dell Children’s Medical Center of Central Texas has been participating in an international study testing a treatment for Niemann-Pick Type C1 disease called VTS-270. We wrote about the trial in November, when…Read More

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Mar10
A Reflection on the past year by Pam and Chris Andrews

Today, March 10, 2017, is a day that our family will never forget. Today is an anniversary that Chris and I never thought we would have to recognize. It was…Read More

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