Andrews Family Featured on Fox News in Phoenix, Arizona

Fox News in Phoenix, Arizona featured Belle and Abby in a story about NPC1. The six-minute video segment highlighted the connection between the Andrews and Parseghian families as they work…Read More

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Belle and Abby’s Story Shared Overseas

Sending thanks across the pond to Closer magazine in England, which profiled the Andrews family and shared their heartfelt story.  The two-page spread in the print edition of the magazine…Read More

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Thank You from the Firefly Fund for Supporting Our Inaugural Event

Thank you so much to our friends and supporters for coming out to help us launch the Firefly Fund. We are so grateful for the support of our community, and…Read More

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Step up to the Tee Fore Their Future!

EXCLUSIVE, SIGNED GOLF BAG  UP FOR AUCTION Want to make a difference TODAY? You can light the way of the Firefly Fund by participating in an online auction for a…Read More

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Andrews family featured in Austin American-Statesman

“Dell Children’s Medical Center of Central Texas has been participating in an international study testing a treatment for Niemann-Pick Type C1 disease called VTS-270. We wrote about the trial in November, when…Read More

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A Reflection on the past year by Pam and Chris Andrews

Today, March 10, 2017, is a day that our family will never forget. Today is an anniversary that Chris and I never thought we would have to recognize. It was…Read More

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People Magazine Features Firefly Fund in Documentary

The hopeful and valiant battle that the Firefly Fund  is  taking on was featured in the February 28th issue of People Magazine. The Andrews sisters’ diagnosis and story is told…Read More

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Pro Golfers to Support NPC1 Research

FORE! Their Future… Help Light the Way. Joslyn and Sean Dobson invite you to join them and other Fund supporters for an exclusive event to raise awareness and funds for…Read More

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Firefly Fund Inaugural Event

Please join us to celebrate the inauguration of the Firefly Fund! Tuesday, February 28, 2017 6:00 – 8:00 pm 3TEN AUSTIN CITY LIMITS LIVE 310 W. Willie Nelson Blvd. #1A Austin,…Read More

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Clinical trial giving one family hope

Dell Children’s Medical Center is giving families hope by opening up the state’s first clinical trial facility to treat an extremely rare condition. Niemann-Pick Type C1 disease is a genetic disorder that…Read More

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