Contact

Center for Rare Diseases Unveiled

Donate or Get Involved

Latest News & Research

• NEWS RELEASE

  FOR IMMEDIATE RELEASE February 27, 2024 Firefly Fund Announces $5 Million Gift to Create Center for Rare Diseases at UT Austin Dell Medical School Austin, Texas – To mark World…Read More

• Firefly Fund Commits $500K to Novel Newborn Screening Study That Will Help Identify Rare Diseases at Birth

  FOR IMMEDIATE RELEASE: May 10, 2021 CONTACT:  Pam Andrews pam@fireflyfund.org Austin Nonprofit Commits $500K to Novel Newborn Screening Study That Will Help Identify Rare Diseases at Birth  Pilot Study enrolls…Read More